This page explains who we are and what we do. Who We Are: We are a voluntary non-profit making registered charity (Reg No 1123246), set up to support and enrich the lives of individuals and families from the UK and around the world who are affected by the following Primordial Dwarfism subtypes: PD Non Specific MOPD Uknown MOPDI MOPDII MOPDIII Meier Gorlin Syndrome Seckell Syndrome We provide support and encouragement to these individuals and their families in any way which is charitable in accordance with the law in England and Wales. In addition to the above, we endeavour to eliminate all the stigma, mystery and any discrimination towards the disorder by promoting a positive attitude throughout the United Kingdom and the rest of the world. What We Do: Raise awareness amongst the general public, medical professions, support services and other interested parties. Identify those with Primordial Dwarfism and bring them into contact with other individuals, families and specialists. Facilitate family support meetings and connections to highlight life issues, concerns and remove the isolation families feels. Create opportunities to allow individuals affected by Primordial Dwarfism to reach their full potential in life. Source out and financially assist with specialist equipment, toys, custom made clothes, costumes and furniture. Hold a yearly international event to bring families together to celebrate life and allow them to meet experts from around the world. Provide trips out and events during the annual convention and also breaks for families needing respite.