Hemophilia Federation of America
www.hemophiliafed.orgHemophilia Federation of America (HFA) is a non-profit 501(c)3 organization incorporated in 1994 to address the evolving needs of the bleeding disorders community. We serve as a consumer advocate for safe, affordable, & obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, & availability of the products the individuals of this community require. Based in Washington, DC, HFA consists of a national office, organization, and 30+ community-based organizations made up of numerous parents, children, siblings, grandparents and friends impacted by a bleeding disorder. Many non-affected individuals and organizations such as healthcare providers, sponsors, donors, & specialty pharmacies play a significant role in the community. HFA utilizes its collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders/hemophilia. HFA represents the bleeding disorders community on Capitol Hill, with the FDA, Centers for Disease Control and Prevention, and other key agencies. HFA strives to educate the community and provide tools that give the community a voice at state & federal legislatures.
Read moreHemophilia Federation of America (HFA) is a non-profit 501(c)3 organization incorporated in 1994 to address the evolving needs of the bleeding disorders community. We serve as a consumer advocate for safe, affordable, & obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, & availability of the products the individuals of this community require. Based in Washington, DC, HFA consists of a national office, organization, and 30+ community-based organizations made up of numerous parents, children, siblings, grandparents and friends impacted by a bleeding disorder. Many non-affected individuals and organizations such as healthcare providers, sponsors, donors, & specialty pharmacies play a significant role in the community. HFA utilizes its collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders/hemophilia. HFA represents the bleeding disorders community on Capitol Hill, with the FDA, Centers for Disease Control and Prevention, and other key agencies. HFA strives to educate the community and provide tools that give the community a voice at state & federal legislatures.
Read moreCountry
State
District of Columbia
City (Headquarters)
Washington
Industry
Employees
11-50
Founded
1994
Estimated Revenue
$1,000,000 to $5,000,000
Social
Employees statistics
View all employeesPotential Decision Makers
Vice President of Meetings
Email ****** @****.comPhone (***) ****-****Member of the Board
Email ****** @****.comPhone (***) ****-****Institute Director
Email ****** @****.comPhone (***) ****-****Director of Technology Services
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Technologies
(60)