ADCY5.org

www.adcy5.org

ADCY5.org supports the patients, clinicians, and researchers involved with the rare disease patient community affected by ADCY5-induced Dyskinesia and other ADCY5-related conditions that are caused by mutations of the ADCY5 gene. The mission of ADCY5.org includes the following: · To identify and communicate with patients and their families affected by ADCY5 gene mutations. ADCY5.org works to build a community that provides support and educates patient families regarding life with an ADCY5 mutation. · To identify and communicate with any researcher or clinician in the world who works in fields encompassing ADCY5 gene mutations. As a neutral party, the organization looks to support researchers and clinicians who leverage established clinical science best practices and open data principals. · ADCY5.org pursues cutting-edge precision medicine technology is needed to advance foundational research or treatments related to ADCY5 gene mutations.

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ADCY5.org supports the patients, clinicians, and researchers involved with the rare disease patient community affected by ADCY5-induced Dyskinesia and other ADCY5-related conditions that are caused by mutations of the ADCY5 gene. The mission of ADCY5.org includes the following: · To identify and communicate with patients and their families affected by ADCY5 gene mutations. ADCY5.org works to build a community that provides support and educates patient families regarding life with an ADCY5 mutation. · To identify and communicate with any researcher or clinician in the world who works in fields encompassing ADCY5 gene mutations. As a neutral party, the organization looks to support researchers and clinicians who leverage established clinical science best practices and open data principals. · ADCY5.org pursues cutting-edge precision medicine technology is needed to advance foundational research or treatments related to ADCY5 gene mutations.

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Country

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State

Louisiana

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Employees

1-10

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Founded

2015

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  • Founder , Board Member

    Email ****** @****.com
    Phone (***) ****-****

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