Cystinosis Research Network

www.cystinosis.org

The Cystinosis Research Network (CRN) is an all volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. The Cystinosis Research Network's vision is the discovery of improved treatments and ultimately a cure for cystinosis, a rare, autosomal recessive genetic disease.

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The Cystinosis Research Network (CRN) is an all volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. The Cystinosis Research Network's vision is the discovery of improved treatments and ultimately a cure for cystinosis, a rare, autosomal recessive genetic disease.

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Country

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State

Illinois

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City (Headquarters)

Lake Forest

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Employees

1-10

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Founded

1996

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Estimated Revenue

$1,000,000 to $5,000,000

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Social

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Potential Decision Makers

  • Adult Leadership Advisory Board Member

    Email ****** @****.com
    Phone (***) ****-****
  • Board Member

    Email ****** @****.com
    Phone (***) ****-****
  • Executive Director , Vice President Research

    Email ****** @****.com
    Phone (***) ****-****
  • Alab ( Adult Leadership Advisory Board ) Vice - Chairperson

    Email ****** @****.com
    Phone (***) ****-****

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