The Multiple System Atrophy Coalition

www.multiplesystematrophy.org

The Multiple System Atrophy (MSA) Coalition® is a 501(c)3 organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA. The MSA Coalition is devoted to a four-pillar mission as it fights a rare and terminal neurodegenerative disorder: - Supporting patients and caregivers affected by multiple system atrophy - Educating patients, caregivers and healthcare professionals - Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA - Advocating for issues important to the MSA community, including creating greater awareness Support, education, research and advocacy are important because multiple system atrophy is a rare disorder. It is estimated that fewer than 15,000 Americans are currently diagnosed with MSA; though perhaps as many as 35,000 more have MSA but are not diagnosed. Few physicians have any knowledge of MSA, leading to prolonged time for an accurate diagnosis. Currently the cause of MSA is unknown and a cure is desperately needed. Donations can be made at www.multiplesystematrophy.org/donate.

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The Multiple System Atrophy (MSA) Coalition® is a 501(c)3 organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA. The MSA Coalition is devoted to a four-pillar mission as it fights a rare and terminal neurodegenerative disorder: - Supporting patients and caregivers affected by multiple system atrophy - Educating patients, caregivers and healthcare professionals - Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA - Advocating for issues important to the MSA community, including creating greater awareness Support, education, research and advocacy are important because multiple system atrophy is a rare disorder. It is estimated that fewer than 15,000 Americans are currently diagnosed with MSA; though perhaps as many as 35,000 more have MSA but are not diagnosed. Few physicians have any knowledge of MSA, leading to prolonged time for an accurate diagnosis. Currently the cause of MSA is unknown and a cure is desperately needed. Donations can be made at www.multiplesystematrophy.org/donate.

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Country

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State

Virginia

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City (Headquarters)

McLean

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Employees

11-50

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Founded

1989

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Estimated Revenue

$1 to $1,000,000

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Social

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Potential Decision Makers

  • Executive Committee , Board Member at - Large

    Email ****** @****.com
    Phone (***) ****-****
  • Executive Director

    Email ****** @****.com
    Phone (***) ****-****
  • Emeritus , Board of Directors

    Email ****** @****.com
    Phone (***) ****-****
  • Member Board of Directors , Care Partner Representative

    Email ****** @****.com
    Phone (***) ****-****

Technologies

(50)

Reach decision makers at The Multiple System Atrophy Coalition

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