The Multiple System Atrophy Coalition
www.multiplesystematrophy.orgThe Multiple System Atrophy (MSA) Coalition® is a 501(c)3 organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA. The MSA Coalition is devoted to a four-pillar mission as it fights a rare and terminal neurodegenerative disorder: - Supporting patients and caregivers affected by multiple system atrophy - Educating patients, caregivers and healthcare professionals - Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA - Advocating for issues important to the MSA community, including creating greater awareness Support, education, research and advocacy are important because multiple system atrophy is a rare disorder. It is estimated that fewer than 15,000 Americans are currently diagnosed with MSA; though perhaps as many as 35,000 more have MSA but are not diagnosed. Few physicians have any knowledge of MSA, leading to prolonged time for an accurate diagnosis. Currently the cause of MSA is unknown and a cure is desperately needed. Donations can be made at www.multiplesystematrophy.org/donate.
Read moreThe Multiple System Atrophy (MSA) Coalition® is a 501(c)3 organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA. The MSA Coalition is devoted to a four-pillar mission as it fights a rare and terminal neurodegenerative disorder: - Supporting patients and caregivers affected by multiple system atrophy - Educating patients, caregivers and healthcare professionals - Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA - Advocating for issues important to the MSA community, including creating greater awareness Support, education, research and advocacy are important because multiple system atrophy is a rare disorder. It is estimated that fewer than 15,000 Americans are currently diagnosed with MSA; though perhaps as many as 35,000 more have MSA but are not diagnosed. Few physicians have any knowledge of MSA, leading to prolonged time for an accurate diagnosis. Currently the cause of MSA is unknown and a cure is desperately needed. Donations can be made at www.multiplesystematrophy.org/donate.
Read moreCountry
State
Virginia
City (Headquarters)
McLean
Industry
Employees
11-50
Founded
1989
Estimated Revenue
$1 to $1,000,000
Social
Employees statistics
View all employeesPotential Decision Makers
Executive Committee , Board Member at - Large
Email ****** @****.comPhone (***) ****-****Executive Director
Email ****** @****.comPhone (***) ****-****Emeritus , Board of Directors
Email ****** @****.comPhone (***) ****-****Member Board of Directors , Care Partner Representative
Email ****** @****.comPhone (***) ****-****
Technologies
(50)