What’s ATAXIAconnect? - A virtual, non-profit, 501c3 Illinois corporation - Developed by an SCA patient and an MD in 2011, to be a trusted information resource - A social entrepreneur organization, with the motive……… “a different way to help” - An entity committed to innovative programs with a focus on healthcare What’s the organization’s mission? - Fostering WELLNESS throughout the Ataxia community - Promoting AWARENESS about Ataxia - Providing EDUCATION to all, especially healthcare professionals - Charitable support for RESEARCH through national efforts Whom Do We Serve? - ATAXIA Patients: • National and International populations, • Multiple diverse clinical types - ATAXIA Caregivers: • Personal, professionals (therapists, clinicians), organizations, and healthcare systems What benefit does ATAXIAconnect provide for the Ataxia Community? - A reliable trustworthy information resource - A unique connection: • Ataxian and Clinician led, so a trusted resource • Social entrepreneur venture • Human interest focused • The eyes and ears of the community • Social media connection - Ataxia dedicated: • Specializing in small segment of neuromuscular disorders • Focused on national and international patients and caregivers - Directly supporting Ataxia community