Hermansky-Pudlak Syndrome Network
www.hpsnetwork.orgThis organization was founded around a genetic disorder in albinos named Hermasky-Pudlak Syndrome. Our goal is to find a cure! Through relationships with interested doctors and the National Institutes of Health, we have begun new research protocols and drug trials are underway for Pulmonary Fibrosis and other related ailments.
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This organization was founded around a genetic disorder in albinos named Hermasky-Pudlak Syndrome. Our goal is to find a cure! Through relationships with interested doctors and the National Institutes of Health, we have begun new research protocols and drug trials are underway for Pulmonary Fibrosis and other related ailments.
Read more
Country
State
New York
Industry
Employees
1-10
Founded
1992
Estimated Revenue
$1 to $1,000,000
Social
Employees statistics
View all employeesPotential Decision Makers
Board Member / New England Coordinator
Email ****** @****.comPhone (***) ****-****Executive Director
Email ****** @****.comPhone (***) ****-****Director of Medical Affairs
Email ****** @****.comPhone (***) ****-****Office Assistant
Email ****** @****.comPhone (***) ****-****
Technologies
(34)
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