Duchenne Data Foundation
www.duchennedatafoundation.orgThe Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy, as well as people carrying the Duchenne and/or Becker gene mutation. DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. Our strategic direction is built around four key pillars: Research and development; Education and training; Standards of care and quality of life; Data Governance and Access.
Read moreThe Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy, as well as people carrying the Duchenne and/or Becker gene mutation. DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. Our strategic direction is built around four key pillars: Research and development; Education and training; Standards of care and quality of life; Data Governance and Access.
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City (Headquarters)
Veenendaal
Industry
Employees
1-10
Founded
2015
Social
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Board Member
Email ****** @****.comPhone (***) ****-****Solutions Architect / Data Analyst
Email ****** @****.comPhone (***) ****-****Project Manager
Email ****** @****.comPhone (***) ****-****Project Manager
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