The change from childhood to being a young adult is never easy. There are so many things to be done; career choice, driver’s licence, taking responsibility for being at places and meeting people…. The situation becomes much more complex when the person has to deal with a chronic illness as well. There is a growing body of research and evidence that the change to adult services should not occur suddenly, but rather through a timely and deliberate “transition of care”. Whilst there is difference from individual to individual, the usual expected transition time is a few years. During this time, there is a slow shift from interacting directly with the carer to the young person, with gradually increasing responsibilities for self-management, and self-advocacy. Our team of health professionals will see that through appropriate screening and assessment of the young person, areas which need strengthening will be identified and dealt with, rather than waiting for the catastrophe to happen and attempting to fix it.