Long Covid Support was formed by a group of people struggling to recover from COVID-19, who found each other online and started campaigning in the UK for recognition, rehabilitation and research into treatment. We advocate for clear public health messaging, evidence based health information and appropriate legislation to enable a sustainable return to work, education or caring responsibilities. We actively promote patient involvement in research, by facilitating the coproduction of research priorities, patient recruitment and dissemination of research findings. In addition, we have a tightly moderated private peer support group which is one of the largest in the world of its type. It's a safe place enabling anyone dealing with, or caring for someone with, Long Covid to share their stories and receive support wherever they are in the world and at whatever hour. Our programme of social and wellbeing activities includes online chats, chair yoga, opera breathing and a choir together with providing specialist resources to help with the debilitating range of symptoms that present with Long Covid.