SYNGAP Elternhilfe e.V.

www.syngap.de

We are a patient organization for families whose children have a SYNGAP1 mutation. SYNGAP1 syndrome includes developmental disabilities, intellectual disability, epilepsy, and in 50% of cases, autism. Together, we advocate for SYNGAP and families with children with disabilities. This includes: Awareness to make the condition better known, education to enable early diagnosis, support, advice and sharing of experiences for affected families, networking with other patient organizations and researchers at home and abroad, and research funding.

Read more

Reach decision makers at SYNGAP Elternhilfe e.V.

Lusha Magic

Free credit every month!

We are a patient organization for families whose children have a SYNGAP1 mutation. SYNGAP1 syndrome includes developmental disabilities, intellectual disability, epilepsy, and in 50% of cases, autism. Together, we advocate for SYNGAP and families with children with disabilities. This includes: Awareness to make the condition better known, education to enable early diagnosis, support, advice and sharing of experiences for affected families, networking with other patient organizations and researchers at home and abroad, and research funding.

Read more
icon

Country

icon

City (Headquarters)

Krefeld

icon

Employees

1-10

icon

Founded

2016

icon

Social

  • icon

Employees statistics

View all employees

Potential Decision Makers

  • 2. Vorsitzender / Vice President

    Email ****** @****.com
    Phone (***) ****-****
  • Syngap1 Rare Disease Advocate

    Email ****** @****.com
    Phone (***) ****-****

Reach decision makers at SYNGAP Elternhilfe e.V.

Free credits every month!

My account

Sign up now to uncover all the contact details