The Avalon Foundation is BY KIDS- FOR KIDS! We are committed to our mission of youth-centered leadership development through service to the rare disease community. By proving emotional support to pediatric patients and their families during life-changing and critical transitions, we help shape a healthier & more positive experience that ensures compliancy with treatments as well as family unity. [Currently, we are serving families with Hypophosphatasia. With future funding, we look forward to helping other rare disease communities.]