Rare Disease Ghana Initiative (RDGI) is a nonprofit organisation in Ghana made up of multidisciplinary team of professionals, patients and their caregivers whose vision is to be the the lead and the voice coordinating rare disease care in Ghana. RDGI has established this multidisciplinary team to develop, seek wide endorsement and to advocate for the implementation of a plan to support research, education, service development, promote awareness of rare diseases and support for affected individuals and their carers. RDGI has the mission to improve the wellbeing and quality of life of persons affected by rare diseases in Ghana.