Project Alive
www.projectalive.orgProject Alive exists to cure Hunter Syndrome / Mucopolysaccharidosis II. We raise awareness, educate, advocate, and drive research to support that mission. Project Alive (formerly named Saving Case & Friends) is a strong and powerful voice for children and adults with Hunter Syndrome, bringing together Hunter Syndrome families and advocates with researchers, industry, and regulators, funding the most promising research with potential for in-their-lifetime treatments, assisting researchers and industry with designing research studies with the most promise for our community, and advocating for the most effective and efficient system of clinical research, evaluation, and approval. Project Alive leverages its resources to: - Advocate and raise funds for research funding and progress toward a cure; - Encourage efficiency and effectiveness in clinical trials of medications to treat or cure Hunter Syndrome; and - Advance public understanding of Hunter Syndrome, its symptoms, the need for early diagnosis and treatment, and the need for research, via traditional and social media efforts, grassroots campaigns, and public advocacy efforts.
Read moreProject Alive exists to cure Hunter Syndrome / Mucopolysaccharidosis II. We raise awareness, educate, advocate, and drive research to support that mission. Project Alive (formerly named Saving Case & Friends) is a strong and powerful voice for children and adults with Hunter Syndrome, bringing together Hunter Syndrome families and advocates with researchers, industry, and regulators, funding the most promising research with potential for in-their-lifetime treatments, assisting researchers and industry with designing research studies with the most promise for our community, and advocating for the most effective and efficient system of clinical research, evaluation, and approval. Project Alive leverages its resources to: - Advocate and raise funds for research funding and progress toward a cure; - Encourage efficiency and effectiveness in clinical trials of medications to treat or cure Hunter Syndrome; and - Advance public understanding of Hunter Syndrome, its symptoms, the need for early diagnosis and treatment, and the need for research, via traditional and social media efforts, grassroots campaigns, and public advocacy efforts.
Read moreCountry
State
Tennessee
City (Headquarters)
Knoxville
Industry
Employees
1-10
Founded
2014
Social
Employees statistics
View all employeesPotential Decision Makers
President
Email ****** @****.comPhone (***) ****-****Executive Director
Email ****** @****.comPhone (***) ****-****Operations Manager
Email ****** @****.comPhone (***) ****-****International Ambassador for Hunter Syndrome Advocacy
Email ****** @****.comPhone (***) ****-****
Technologies
(30)