Project Alive

www.projectalive.org

Project Alive exists to cure Hunter Syndrome / Mucopolysaccharidosis II. We raise awareness, educate, advocate, and drive research to support that mission. Project Alive (formerly named Saving Case & Friends) is a strong and powerful voice for children and adults with Hunter Syndrome, bringing together Hunter Syndrome families and advocates with researchers, industry, and regulators, funding the most promising research with potential for in-their-lifetime treatments, assisting researchers and industry with designing research studies with the most promise for our community, and advocating for the most effective and efficient system of clinical research, evaluation, and approval. Project Alive leverages its resources to: - Advocate and raise funds for research funding and progress toward a cure; - Encourage efficiency and effectiveness in clinical trials of medications to treat or cure Hunter Syndrome; and - Advance public understanding of Hunter Syndrome, its symptoms, the need for early diagnosis and treatment, and the need for research, via traditional and social media efforts, grassroots campaigns, and public advocacy efforts.

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Project Alive exists to cure Hunter Syndrome / Mucopolysaccharidosis II. We raise awareness, educate, advocate, and drive research to support that mission. Project Alive (formerly named Saving Case & Friends) is a strong and powerful voice for children and adults with Hunter Syndrome, bringing together Hunter Syndrome families and advocates with researchers, industry, and regulators, funding the most promising research with potential for in-their-lifetime treatments, assisting researchers and industry with designing research studies with the most promise for our community, and advocating for the most effective and efficient system of clinical research, evaluation, and approval. Project Alive leverages its resources to: - Advocate and raise funds for research funding and progress toward a cure; - Encourage efficiency and effectiveness in clinical trials of medications to treat or cure Hunter Syndrome; and - Advance public understanding of Hunter Syndrome, its symptoms, the need for early diagnosis and treatment, and the need for research, via traditional and social media efforts, grassroots campaigns, and public advocacy efforts.

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Country

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State

Tennessee

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City (Headquarters)

Knoxville

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Employees

1-10

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Founded

2014

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Social

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Potential Decision Makers

  • President

    Email ****** @****.com
    Phone (***) ****-****
  • Executive Director

    Email ****** @****.com
    Phone (***) ****-****
  • Operations Manager

    Email ****** @****.com
    Phone (***) ****-****
  • International Ambassador for Hunter Syndrome Advocacy

    Email ****** @****.com
    Phone (***) ****-****

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