Familial chylomicronemia syndrome (FCS) is a rare and potentially life-threatening genetic lipid disorder. The FCS Foundation is a nonprofit organization created by a group of FCS patients and their caregivers. It is dedicated to providing information and support to people affected by FCS and to identifying new resources to support research to find new treatments and potentially a cure. The Foundation is registered in California and provides information and support services through an online portal at www.livingwithfcs.org. It will also develop a range of educational and support programs and services for patients. Additionally, The FCS Foundation will take an active role in building broader awareness of FCS among clinicians and other care providers who support FCS families.