Global Association for PKU

www.globalpku.org

Our Vision is that all people living with PKU, despite their origin, will be able to reach their full potential. Our Mission is to advance PKU as a global health priority and strengthen PKU associations and groups throughout the world. As people living with PKU, our priorities are: - To create a global platform for PKU advocacy that includes ensuring universal access to newborn screening and diagnosis, treatments and comprehensive care; - To mentor like-minded patient associations and groups and offer best practices and support that are sensitive to their experiences, culture, language(s) and laws; - To increase collaboration among PKU researchers, scientists, clinicians and patient groups to move basic science and research forward to accelerate new knowledge, treatments, and a cure.

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Our Vision is that all people living with PKU, despite their origin, will be able to reach their full potential. Our Mission is to advance PKU as a global health priority and strengthen PKU associations and groups throughout the world. As people living with PKU, our priorities are: - To create a global platform for PKU advocacy that includes ensuring universal access to newborn screening and diagnosis, treatments and comprehensive care; - To mentor like-minded patient associations and groups and offer best practices and support that are sensitive to their experiences, culture, language(s) and laws; - To increase collaboration among PKU researchers, scientists, clinicians and patient groups to move basic science and research forward to accelerate new knowledge, treatments, and a cure.

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Country

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City (Headquarters)

Toronto

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Employees

11-50

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Founded

2018

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Social

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Potential Decision Makers

  • Vice President

    Email ****** @****.com
    Phone (***) ****-****
  • Founding Trustee and Secretary

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    Phone (***) ****-****
  • Academic Assistant

    Email ****** @****.com
    Phone (***) ****-****

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