Myotonic Dystrophy Foundation

www.myotonic.org

We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person. MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community. Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

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We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person. MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community. Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.

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Country

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State

California

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City (Headquarters)

Oakland

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Employees

1-10

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Founded

2007

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Estimated Revenue

$1 to $1,000,000

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Social

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Potential Decision Makers

  • Member of the Board of Directors and Treasurer

    Email ****** @****.com
    Phone (***) ****-****
  • Program Director

    Email ****** @****.com
    Phone (***) ****-****
  • Director of Communications and Technology

    Email ****** @****.com
    Phone (***) ****-****
  • Fund Raiser / Advocate / Atlanta Support Group Facilitator

    Email ****** @****.com
    Phone (***) ****-****

Technologies

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