X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan’s syndrome, is a rare always fatal disease that affects only boys. To date only about 100 families and 400+ boys have been diagnosed worldwide. It is likely, however, that there are many more cases where the correct diagnosis has not been made. Founded in 2005, the XLP Research Trust exists to 1. Promote and fund research into the cause, management, symptoms and cure for XLP 2. Provide a point of contact and support for those families affected by XLP 3. Raise the awareness of XLP amongst the medical profession and the general public